To read the full report please click here.

For many years parents have contacted us about pains that their children have in their legs, especially after a long day of activity and normally during the night.

Many doctors said it had nothing to do with their heart condition but was normal ‘growing pains’.

We decided that we would create a survey, in partnership with the CHD research team in Newcastle, to have a look at the number of cases reported.

Click here to see our findings

Coping with leg pains when you have a complex heart condition.

The best treatment is to rub the pain away and to give a dose of Calpol. Sometimes a warm hot water bottle and making sure the children’s legs do not become cold can reduce the number of disturbed nights.

Having agreed that this is a normal problem for children with CHD, further research will be done to find a cause.