Social Media Support 📱❤️
Our public Facebook page
Our private Facebook groups
Parent member group
This is a safe, private space for the parents of LHM, we currently have over 1000 group members. Perhaps you would like to raise a question, share an achievement or seek the insight of other families who are also living with the challenges of having a child with a single ventricle heart.
“I truly love this group, even when I do not post anything for a while, I love looking at the happy posts from other parents and often the advice given here is very relevant to us.”
The Virtual Shed
A new group dedicated to LHM dads of children with a single ventricle heart. LHM’s virtual shed gives dads a chance to link with each other, share stories and ask questions. Their own place to chat about the half a heart journey.
Grandparent Group
A safe and secure place for LHM grandparents to talk and share their experiences of life as a grandparent of a young person with half a working heart. This group is open to full members of LHM only.
Bereaved Members Group
Where parents who have lost a child to complex heart disease can seek the support of other parents and ask questions of each other.
Team LHM
Come and join our friendly community of fundraising heroes. This is a group dedicated to the amazing people that so generously raise funds for Little Hearts Matter. You could be holding a bake sale, skydiving or hiking… all of our generous fundraisers are welcome into this group.
The Youth Zone
This is a group dedicated to our Fab Youth Services program for young LHM members aged 11 to 17. On this page you can read stories, achievements, problems and articles for teenagers with complex congenital heart conditions like Hypoplastic Left Heart Syndrome, Double Inlet/Outlet Ventricles, Tricuspid Atresia, Complex Pulmonary Atresia or Univentricular Heart.
Transition to Adult Services
This group is for full members of Little Hearts Matter that have a child 14yrs+ with a single ventricular heart condition and are going through the transition to adult services.
LHM SVH Adults
This is a closed group for LHM adult members (aged 18+) who live with half a working heart, to talk to each other, share experiences and ask questions.
Research Discussion