Resources for children

My baby sister has something wrong with her heart

A story for siblings aged 4 to 5, to help them understand what happens after birth to a baby who is born with a heart condition.

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My new baby sister has something wrong with her heart

A story for siblings aged 4 to 5, to help them understand the antenatal diagnosis of a heart condition to young children before the baby is born.

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Jessica has a heart operation – story book for children

Jessica has a heart operation, written by a Mum, Louise, to prepare her daughter Jessica for her Fontan operation. With hand drawn pictures and a clear simple explanation of what will happen in hospital there could not be a better way to explain going in to hospital.

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Jack has a heart operation – story book for children

Jack has a heart operation, written by a Mum, Louise, to prepare her daughter Jessica for her Fontan operation. With hand drawn pictures and a clear simple explanation of what will happen in hospital there could not be a better way to explain going in to hospital.

Click here.

Umph!

Introducing Umph! A simple yet very useful storybook created by Kathy, one of our amazing grandparent members. This is a fantastic resource for parents who are preparing their children for the Fontan procedure, helping them to understand the need for surgery.

Click here.