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Youth Stories

John’s Story

...termination, birth with no intervention which would allow him to die, or open heart surgery

Fontan Associated Liver Disease

...ask if I have questions? Always feel free to ask questions of your cardiac team

The Governance Team

...combined with the rigours of growing up. Isabel was an Export Marketing Research Adviser for
Research

Research priorities in single-ventricle heart conditions: a United Kingdom national study

Published in 2018, the object of this project was to bring together stakeholders in the
Research

Taking your Baby home from hospital – Research Project

...we will be in touch shortly with the Zoom link. New Research Study Project to

Jara’s Story

...research which draws from her lived experience as an adult with a single ventricle condition.
News

Response to NHS England’s decision about the future of congenital and children’s heart services in England

...NHS England to ensure that they meet the timeframes set out for completion. The Freeman,
News

Update on the infection risks associated with heater cooler units used in open-heart surgery

...the infection have been identified in patients who had surgery since this guidance was published,

Youth – Covid-19 Support

...https://www.nhs.uk/live-well/eat-well/healthy-eating-for-teens/ https://www.nhs.uk/live-well/eat-well/ Vitamin D There is some evidence that the people who have suffered the

Youth – Keeping Fit during Covid-19

...https://www.nhs.uk/live-well/eat-well/healthy-eating-for-teens/ https://www.nhs.uk/live-well/eat-well/ Vitamin D There is some evidence that the people who have suffered the