Latest news
Help us raise awareness of the needs of children with heart disease with the Department of Work and Pensions.
Why does the Department of Work and Pensions exclude Heart Disease in Children from DLA guidance? 1 in 145 children a year are born with heart disease and a furtherZipper Zone Launch
We’re very excited that our new youth site for our young members – Zipper Zone – has finally gone live! We hope that you enjoy browsing through the site andHelp us make a change to Disability Living Allowance for children with heart disease.
Why are so many heart children turned down for DLA despite their disabilities? We think it’s partly because heart disease is not given a place in the guidance used byHoliday company to support families when their child has half a heart
A holiday rental company, called Charmron, with apartments in Eastern Algarve Portugal, have agreed to donate funds from each booking to Little Hearts Matter, a national charity that supports families
Bristol Children’s Hospital invite patients and families to a listening event
The Bristol Children’s Hospital team are inviting patients and families to a listening event on Thursday 13th October. Please click here to download the newsletter which contains more information about the
Answers from NHS England re Restructure of Congenital Cardiac Services
As promised here are the comments and answers that were discussed by the NHS England Review team meeting last Friday An NHS Panel took questions about the possible forthcoming changes
The patients and families voice
On Friday 29th July Suzie is presenting at an NHS England implementation meeting. The aims of her talk are to highlight areas that families feel are imperative when planning the future
Birmingham Bullring announces Little Hearts Matter as their Charity of the Year
Little Hearts Matter is thrilled to announce that we have been selected as the Birmingham Bullring’s Charity of the Year for 2016/2017. With a footfall of 35 million per year, the
The NHS England Congenital Cardiac Review report
Many LHM members know that over the past four years there has been a major review of children’s and adults congenital cardiac services in England. Having learnt from the mistakesIf you’re a journalist and want to find out more about LHM, please contact us using the form below.