Grandparent Stories - Little Hearts Matter

LHM Grandparent Stories

These stories have been kindly written by LHM grandparents affected by a diagnosis of a single ventricle heart condition. If you are an LHM grandparent and have a story to share, please let us know by using the contact form at the bottom of this page.

Colin's 80-80 Story

I have been fundraising for LHM since the birth of our grandson in 2004 in recognition of the enormous help the staff have given to our family

Linda's Story

When my daughter found out, I was shocked, saddened, but also confused because I had never heard of Tricuspid Atresia

Jan & Evelyn

LHM grandparent Jan sends us an update on her granddaughters progress following her Fontan operation

Steve's Story

My Grandson Louie was born on the 12th July 2008, it was a time of great excitement which was turned on its head.

Karen's Story

To see my first born grandchild in this way for the very 1st time was naturally upsetting for me…wondering what all the tubes and wires were for?

Richard's Story

When we first heard we were expecting our first grandchild we were living in France blissfully unaware of what lay ahead.

Little Hearts Matter will always obtain full consent-to-share before publishing stories about our members. If you wish to re-share anything found on this page, please contact us using the form below to request consent.

This page was last updated in April 2023.

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