Little Hearts Matter’s Youth Members and Youth Leader Lexie spoke together about consent on their half a heart journey. This then contributed to a new research paper with some interesting
What was the impact of the first wave of COVID-19 on the delivery of care to children and adults with congenital heart disease? A qualitative study using online forums. Click
Published in 2018, the object of this project was to bring together stakeholders in the United Kingdom to establish national priorities for research in single-ventricle heart conditions. In partnership with
Back in 2019, in its 25th Anniversary year, Little Hearts Matter sought to review how the needs of its membership may have changed over the past 25 years and where their
Heart surgery in young children: routine monitoring of complications can help assess the quality of care. Written by friend of LHM, Kate Brown, for the National Institute for Health Research,
Children’s and Parents’ Consent to Heart Surgery Research project 2019-2021, September 2021 Thank you very much to everyone who helped with our research from Priscilla, Rosa and Katy at University
Suzie Hutchinson asked me to write about the early history of treatments for single ventricle over the years; she chose me to write this because I am old! I started
To read the full report please click here. For many years parents have contacted us about pains that their children have in their legs, especially after a long day of