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LHM SVH Adult Stories

These stories are here to help you learn more about Little Hearts Matter SVH Adult members living with a single ventricle heart condition. If you would like to share your own story, please contact us using the form at the bottom of this page, we would love to hear from you.

Jessenia's Story

My name is Jessenia, I am 19 years old and have a single ventricle heart condition. In October 2023, I started a 2-year level 3 apprenticeship at my local hospital in Milton Keynes to train to become a registered pharmacy technician.

Connor's Story

During my operations, my family were introduced to Left Hearts Matter, later to become Little Hearts Matter, they have been an amazing support to me and my family.

Kirsty's Story

The day before my 34th birthday marks 24 years since my Fontan surgery was completed, an operation that gave me time and hope. Here is my story.

Emily's Story

Hi, my name is Emily, I'm 20 years old living with Hypoplastic Left Heart Syndrome. My parents first learnt about my heart condition at the 20 week prenatal assessment.

Gemma's Story

My name is Gem, and I was born with a complex congenital heart condition - Double inlet left Ventricle, Pulmonary Atresia.

Ben's Story

Ben, twenty six years old with Hypoplastic Left Heart Syndrome, speaks to Little Hearts Matter about his successful car detailing business.

Hannah's Story

Living life to the full as much as I can is massively important to me. Mum and dad were told I wouldn't make it past 15 years old!

Jack's Story

I’m Jack, HLHS, business owner, adventure seeking mad man, and living life to the fullest with half a working heart!

Donna's Story

‘When I Was Born In 1967 There Were No Antenatal Scans’ – I’m Donna, 49 years old with a complex heart condition.

Elizabeth's Story

My brother Harry was born with Hypoplastic Left Heart Syndrome with Double Outlet Right Ventricle.

Little Hearts Matter will always obtain full consent-to-share before publishing stories about our members. If you wish to re-share anything found on this page, please contact us using the form below to request consent.

This page was last updated in April 2023.

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